Patients & Family
Sepsis Alliance provides information and resources to help you better understand your or your loved one’s sepsis diagnosis.
Diagnosed with Sepsis
For anyone recently diagnosed with sepsis, this is the place to start.
Sepsis Survivors
Some sepsis survivors recover completely and resume their lives, while others may struggle to cope with enduring effects of their illness. Here you can find information to help you navigate post-sepsis life.
Caregivers
When your loved one becomes ill with sepsis, you may not know what sepsis is or how to help them. Here are resources that may help you navigate this complex and difficult journey.
Lost Loved Ones
Losing a loved one to sepsis can leave you with grief as well as many questions. Here are answers to some of the questions you may have after losing a loved one to sepsis.
Sepsis Alliance Connect
Sepsis Alliance Connect is the virtual support community for anyone affected by sepsis.
Faces of Sepsis
Sherry S.
I became septic after a UTI that sent me to ICU for 3days. (Sepsis and Urinary Tract Infections) Weeks after I got out of hospital. I had to several trips to the E.R. Related to anaphylactic shock due to allergic reactions of unknown causes. After seeing an allergist it was determined that I had no allergies. My problem was mast cell activation syndrome caused by septic shock. I take allergy medicine every day. And carry an EpiPen. I am on a low histamine diet. Lately I have several issues related to mental problems, cognitive decline, memory loss, inability to process ... Read Full Story
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Brittany B.
I had just turned 29 and had gastric sleeve. About 6 days later I experienced a high fever, dizziness, and overall bleh feeling. (Sepsis and Surgery) I had gone to the ER and was advised I was going in septic shock. They couldn’t get a blood pressure reading on me, had a super elevated heart rate, and high fever. It was soon discovered that the gastric sleeve leaked. The quick actions of the nurses and doctors that evening were able to get me stabilized and transported to a bigger hospital. I spent 5 days in ICU and another 4 days ... Read Full Story
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Leslie Hogeboom
End of October I had to get a colostomy that was pretty hard to deal with at first. Fast forward to a week before Thanksgiving had to go back into hospital for a hernia repair and prolapse (intestine came out of stomach). Basically since day after Thanksgiving until 3 weeks ago I don’t remember much. (Sepsis and Surgery) I ended up with sepsis and basically went crazy. Sepsis set off a massive inflammatory reaction in my body and caused me to develop a serious brain problem called toxic metabolic encephalopathy (TME), a type of delirium. I was in hospital on ... Read Full Story
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Madison Grogan
July 8, 2025 is the day my life was altered forever. I was 18 years old and already dealing with severe complications of hEDS [hypermobile Ehlers-Danlos syndrome]. Those complications culminated in me needing a PICC line while recovering from port-a-cath surgery. (Sepsis and Invasive Devices) The early morning of July 8th I woke up to a swollen, red and hot arm in which my PICC dwelled. Of course having the catheter you are informed to immediately proceed to the ED if those symptoms present. Unfortunately the first doctor only did a Venus duplex ultrasound and missed a large DVT and ... Read Full Story
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Danielle Amato
On January 31st, 2023 at 28, after suffering from an extremely sore throat, I went into septic shock and had toxic shock as well. All from strep throat, which I had never even had as a kid! (Sepsis and Strep Throat) There’s arriving at the hospital and then about a 3 week gap in memory, replaced by bizarre dreams. My kidneys and heart both failed and I narrowly escaped needing ECMO. I was in the hospital and rehab for about four months. I had my right arm below the elbow amputated as well as my fingers and toes. Three months ... Read Full Story
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